Learn more about the organisations dedicated to spreading awareness and providing support to individuals living with spinal muscular atrophy.
SMA UK provides confidential emotional support, practical advice and guidance to families and adults affected by SMA. Information on our website covers a wide range of SMA-related topics including ‘living with SMA’ for parents, teenagers and adults. Established for over 35 years, we also offer opportunities to meet others virtually and, when possible, at face-to face events. Our multisensory toy packs are free of charge for infants up to 12 months of age in the UK. If your child is older, we may be able to help you access other suitable toys.
Muscular Dystrophy Ireland (MDI) is a national, voluntary, member organisation. We work to realise our vision of an Ireland that enables people with neuromuscular conditions to fully participate in society and reach their full potential. We do this through the provision of support services, advocacy, awareness raising and research into neuromuscular conditions.